Lemon Cheesecake wrote:I am glad you mentioned POTS, the symptoms sound similar to something someone I know is having so I am going to tell them to take the test to check for it.
It is amazing how many of the autoimmune issues begin with a "rogue" virus. EBV, Ebstein Barr virus ( think mono)can cause chronic issues that can lead later to other problems like MS or lymphoma or fibromyalgia for examples.
POTS sounds similar that it can start from having a virus & be chronic & cause fatigue.
Like other autoimmune issues it sounds like POTS may benefit from a low sugar low carb diet. I know many of my issues subsided when I went to low carb diet. I rarely eat breads, pasta or rice anymore & my body seems to flow better & I don't get the debilitating intestinal pain. But cutting out breads means I don't eat wheat products & I try to stay away from processed foods as well. I am still working on some of the other issues I have, one being whether I am dehydrated as in low on electrolytes.
I had POTS before it was cool
/jk I have no memories of having a serious virus prior to my health issues (which have been ongoing my entire adult life yay), I did however have a breakdown?
then again I get sick so often its hard for me to know if its "just a cold". I noticed fellow autistic people have a lot of the same uh health issues as me. So thats something else noteworthy. Lots of brain neurosciencey things there. Autistic people are prone to things like Fibromyalgia and Ehlers-Danlos syndromes (there are studies atm). Which means some health concerns, especially those that are partly psychosomatic in nature, can be exasperated by
trauma
(the leading factor is autistic people are easier to traumatize weee)
My POTS advice is as such: lots of salt and pace yourself
and like use mobility aids if you need them. Things like POTS is frustrating because sometimes you are walking fine and other days you might need a cane and I guess imposter syndrome can get to ya
I too am dehydrated and low on electrolytes...it feels AWFUL
what do you eat? I have cut out gluten. And lessoned my dairy products and also have to take Lactaids. Because I have ARFID, I struggle with food
I keep wanting things that dont seem to have many good gluten free options. Like so many pizza crust taste like cardboard. I have found some nice pastas but they are expensive... What is the issue you find with rice might I ask? Do you enjoy lentils?