Lemon's drop-inn

[npixelz]

Sadge

[Lemon Cheesecake]

Autumn is definitely here today.

[JinMay]

oh I am so sorry you can't get the tests done closer to where you live, do the hospitals not do them? I think our hospitals have diagnostic facilities ... although not sure if a stress test is included in that as I have never had one.

I do know they have sleep apnea tests that can be done at home or heart monitoring tests that can be worn at home. I wonder if you can do something like that so you don't have to travel so far because driving in a big city I think would be very stressful! Or can someone drive you ??

But getting a baseline is beneficial so I guess if there isn't another way then you need to do it. Make sure you ask for a copy of all your labs & records!

They don't, unfortunately. I have done heart monitoring tests at home plenty of times and I just mail them back when I'm done. So that's easy, and I've done a sleep apnea test once I think. It was easy to send back too. My dad will be driving me to the place. I'm just going to be in charge of making sure we both bring something to drink and snack on, and I will be bringing the address of the exact place we're going to that way I know what building to look out for.

I think all the records are kept online in my account, so I should be able to see them and print them out if I need them.

Hello, JinMay!

Sorry I'm only catching up now (so many things IRL). It sounds like an 02 issue--you're not getting enough. So many causes and solutions so stay hopeful.

You might consider getting an Oximeter (typically can be found for under $10) to track your blood O2 levels. Maybe you'll notice a pattern that can be helpful. I was really surprised how quickly you can boost your O2 level with just a couple of deep breaths! Just beware that too much O2 can cause a low levels of CO2 which can be very bad too (what happens when you hyperventilate).

Were you having any symptoms that set you on this current journey?

We're really glad to hear from you, good, bad or anything in between!

Galled hi! It's very nice to see you!
Ah don't worry, I've been pretty busy as well so I totally get it.

An Oximeter? I think I have one, yeah. It goes on the finger right? I have one I just always forget that I have it. lol So I always forget to use it but I do have that and I have something that we use to check blood pressure. That wraps around your arm. I mostly use it on my mom though just to make sure she's okay.

Well it's been a journey that I've been on since birth, technically.
I'm supposed to see my cardiologist every 6 months.
But I hadn't seen mine since I think before Covid. So now that I have a new one, it's just a bunch of redos to see where my levels are at now. Just to update information, you know?

I had a biopsy done and a catheterization (to take pictures of my heart) done the same day on the 25th of September. Which I'm all recovered now except the pelvic area were the cath procedure was done, still hurts sometimes and I still have some bruising but no more bleeding and no more itchy scabs.

Results are that my liver is stage 2 of 4 which, apparently is good for my age?
Also, they found that I'm having a lot of blue blood cells mixing with the red. Apparently there's something there that doesn't belong. So that's why they want to do the stress test, to see if my oxygen levels fall below I think they said 80. If they do, I could get another ccath procedure done to remove the thing that's producing the blue blood cells because that could be the reason I struggle with getting enough oxygen.

So that's where we're at right now and my stress test is scheduled for the 30th of October and I'm tempted to wear some kind of maybe Halloween thing that's not an actual costume and ask for candy. lol

[galled]

Getting a baseline on O2 is probably a good idea. Yeah, under 80 and humans start passing out. High 80's is about low normal. The big thing is will it go up if you take a deep breath or two.

I'm so sorry about it all, but you're handling it very well. You're inspiring!

[JinMay]

My normal from what I have seen, is low 80s sometimes high 70s. Getting to high 80s or low 90s is super difficult for me. I honestly can't remember ever seeing a 90 for my bp. ; n ;

It's tough. I feel weak out of nowhere. I get dizzy spells even if I'm sitting down, I get very lightheaded suddenly at random. But I still push forward and do my best. I take my medication daily because I have to. I take a multi vitamin each day too. I do what I can, you know? I'm 33 now and still kicking, thankfully.

[Lemon Cheesecake]

JinMay , you have such a positive & strong attitude, I love your sense of humor.

I am so sad you have struggled since birth but look how long you have survived, yay!

I will have to try to research about the blood cells & oxygen as I really don't understand it but I am relieved you are getting some help & I hope you stay proactive. I worry that you get weak & feel like passing out so easily. But I hope the Doctor's can find solutions for you quickly.

Is this a hereditary issue?

Also, thankfully sounds like the liver biopsy was good as well.

Keep you in my prayers!

[npixelz]

My best friend also has health issues, though it's physical stuff, but he's also really positive and strong like JinMay


It's amazing how people who have every reason and right to hate their life are often the people who see the beauty in it

[Lemon Cheesecake]

I think that they appreciate the good because they have experienced the loss.

[npixelz]

Yeah


It's like the saying from Prince of Egypt; "and that's why we share all we have with you, though there's little to be found, when all you've got is nothing, there's a lot to go around"
People who have less tend to appreciate what they have more

[Lemon Cheesecake]

hmm & more willing to share because they know what it is like to do without & have someone bless them by sharing.

[JinMay]

JinMay , you have such a positive & strong attitude, I love your sense of humor.

I am so sad you have struggled since birth but look how long you have survived, yay!

I will have to try to research about the blood cells & oxygen as I really don't understand it but I am relieved you are getting some help & I hope you stay proactive. I worry that you get weak & feel like passing out so easily. But I hope the Doctor's can find solutions for you quickly.

Is this a hereditary issue?

Also, thankfully sounds like the liver biopsy was good as well.

Keep you in my prayers!

Thank you lemon, I sure try! It gets difficult at times but I love my family and there are still things I want to experience and I'm surrounding myself with good people, cutting off the negative ones from my life.

Yes! It's something I reflect on every birthday now and get emotional doing. I am truly blessed to be here.

From what I know, blue blood cells have less oxygen and shouldn't be mixing with the red ones. The doctor said that whatever was dropping the blue in with the red, didn't even belong there. It's like... an extra piece that they could remove if I wanted them too and it shouldn't affect me in a negative way; but that's why they want to do the stress test just to be sure. It's a bit confusing honestly but I'm happy that they actually take time to answer questions clearly. I appreciate that a ton.

I'm not sure it is. Well I don't know because I don't remember if any of my extended family has or had the same issues or similar ones as I do.

That biopsy was my first ever one so I didn't know what to expect but wow was it painful.

Gotta see the good in everything. My mom always told me that even when something bad happens, there's always something good to see in it too. Sometimes I struggle seeing the good but I still try. I like to tell myself things happen for a reason.

[galled]

My normal from what I have seen, is low 80s sometimes high 70s. Getting to high 80s or low 90s is super difficult for me. I honestly can't remember ever seeing a 90 for my bp. ; n ;

Are we talking about O2 level (Oximeter reading) or BP (Blood Pressure)?

Biopsy is not fun. Well, it's over and the silver lining is it's one step closer to the solution! It really sounds like they can fix the problem. It could be a real game changer for you! We're rootin' for you!

Please keep us posted!

[Lemon Cheesecake]

"Gotta see the good in everything. My mom always told me that even when something bad happens, there's always something good to see in it too. Sometimes I struggle seeing the good but I still try. I like to tell myself things happen for a reason."

Good advice, I try to remind myself of that as well. I like the sound of your Mom, JinMay!

I am relieved to hear the Doctor's are narrowing down what is causing the issue and possibly have the answer to help your body fix it!

[Shamrock Shamus]

hello! Sorru for disappearing again. Its midterms so I've been pretty busy with school and then I work and come home and take care of the kids. I've basically got no free time for myself.
Has anyone heard of ball jointed dolls? A friend in romania sent my daughter one and my daughter has found her new special interest. Said daughter is level two autistic with ADHD and when she finds something she likes she gets super hooked on it. I bought her another one because some boy from school who is friends with my son hit her while I was at school. This boy has been RUTHELESS to her. His name is Sawyer and I have never hated a child with such a passion. I don't usually let my son, Wyatt hang out with Sawyer but today I was too tired for any arguing so I said "whatever." I regret my desicion.

How have you guys been? Sorry if I have typos. I'm barely functional right now.

[Lemon Cheesecake]

Sometimes it is good just to vent. Sorry you are feeling pulled thin & have no energy to deal with everything.

Sounds like it may be a good conversation opener with your son in regards to how he feels about his "friend" bullying his sister... when you are rested. A reminder too that he is his sister's protector. (Of course not meaning he gets into physical fights for her but he keeps an eye out for her & stands up to others that he knows are trying to cause her harm, let an adult know, help her to walk away or get them to walk away. There may be other pressures going on in your Son's life regarding his peers or this particular boy, so a discussion about what he is feeling is important.
I am assuming the boy's parents are not involved in discipling their child?